Karaoke King

Mga anak ko habang nagko-concert dito sa bahay. Kakauwi lang galing from school kaya para ma-relax kanta muna. In fairness, nasa tono naman.

A Very Important Announcement!

I have an old blog that I started, I think three years ago and thru that blog, I made new (cyber) friends. Faceless friends that welcomed me to the world of blogging.


Umpisa nga akala ko walang “naliligaw” na magbasa pero mga ilang linggo, may nag-iwan na ng comment, followed by another comment hanggang sa medyo dumami tapos winelcome na ako as one of the members of our so-called “blogkadahan”.


Kahit madalang na akong mag-update dito sa inaamag kong blog, patuloy pa rin ako sa pagbisita sa mga ilang natirang kablogters at isa rito ang simula pa lang sa una ay paborito ko na. Uhugin pa sya non pero you can tell that this young lady is smart, nice, ornery, palaban at super ganda…oh, those killer legs and smile!


Isa ako sa nakasubaybay sa istorya ng buhay nya. Sa pagiging estudyante nya, sa pagiging masahista nya at ngayo’y sikat na writer. Unti-unti na nyang naaabot ang kanyang mga pangarap at bilang kaibigan, masaya ako para sa kanya.


Wala na yung ” Ella, Confessions ng Isang Masahista” blog pero me plano syang i-revive sans the “masahista” kwentos kasi po a publisher owns that right, but the good news is…………………………..


News Flash: Blog Book to be Released!!!

It may be long delayed but it was worth the wait. The blog book ‘Diary ni Ella: Confessions ng Isang Masahista’ will be available starting Sept. 12-16 at the 29th Manila International Book Fair at the Mall of Asia’s Halls 1-4 SMX Convention Center. Published by Tahanan Books, it is a compilation of original blog entries that started in 2005. The book will be available at all major bookstores.
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Who am I to promote the book tanong nyo siguro ano? Well, Ako ho ay isang kaibigan na in my own little way, nag-iisip kung pano makatulong. Alam ko ho na hindi kailangan ng “tulak” nito dahil Ella is a famous blogger, malawak ng clout nito sa cyberworld dahil talaga namang napakahusay na manunulat.


Regret ko nga lang hindi ako nakarating sa first EB (eyeball) ng blogkadahan nung 2005 de sana me katibayan na kilala ko si Ella. Ngayon hindi ko alam kung me oras pa sya para EB.
Anyways, okey lang kasi isa ako sa mga UNANG makakakuha ng kopya ng libro nya..AT HINDI LANG BASTA KOPYA, MAY OTOGRAP AT PEKTYUR PA!! Swerte ko talaga!


Congratulations Ella and more power!

Akala Ko...

..... kaya kong dalhin. Hindi pala. Mahina talaga ako pero masisisi nyo ba ako? Ina ako at pagdating sa anak, lalo at may sakit, ibang usapan na.


..... kaya kong maging kalmado pagdating sa emergency, hindi pala. Tumawag sa akin ang school nurse kasi ang blood sugar ni Kyle ay 546 at may large ketones sa ihi.


..... simpleng sitwasyon lang. Palitan lang ang site, tumawag sa ospital para malaman kung ilang units ng insulin ang ibibigay bukod sa correction bolus sa pump at maayos din ang lahat. Yun bang routine na dahil hindi lang naman ito isa o dalawang beses na nangyari.


..... from large ketones, bababa na sa medium at mga ilang oras pa, ni trace wala na. Tulad ng dati. Pero sa blood sugar na 91 talagang mataas pa rin ang level ng ketone kaya tawag uli sa ospital. This time pinabigyan nila uli si Kyle ng 5 units ng insulin via injection bukod pa sa naibigay na sa kanya nung una na 2.2 units via pump at 3 units via injection.


..... katapusan na ng mundo ko. Habang kumakain kasi sya, napansin ko na hindi na nya maidilat ang mga mata nya at panay na ang higa sa akin. Pag pinatingin ko sa mga mata ko, hindi na nya mai-focus. Tsinek uli ng nurse ang sugar nya at nung makita ko muntik na akong mamatay...29.


..... mawawalan na ng malay ang anak ko. Hirap na kasi naming painumin ng orange juice. Umiiyak na sya na siyang ikinaiyak ko na rin. Biglang pumasok sa isip ko ang 911 na magsusuguran sa school nya na ilalabas syang unconscious at nasa stretcher. Natakot ako para sa anak ko....


Sa ngayon nandito na kami sa bahay. Dito ko na lang sya imo-monitor. Pag-uwi nga namin ang sinabi agad sa akin--- " I thought you're going to clean the house?" Kaya nangiti na lang ako kahit tulo luha at sipon ko. Natutulog sya ngayon. Kaka checked ko lang ng sugar nya at ayos naman na---119. Uulitin ko na lang uli pagkatapos ng isang oras at pag nagising na sya, itse-check ko naman ang ihi tapos ire-report sa doktor nya.


Akala ko, kaya kong maging matapang sa ganong sitwasyon. Ilang beses ko ng kinundisyon ang sarili ko just in case dumating ang mga ganong pagkakataon. Hindi pwedeng magpakita ng hina ng loob lalo na sa harap ng anak ko. Hindi pwedeng tumulo ang luha o kahit na konting nginig ng boses, hindi dapat ako kakitaan ng ganon. Kailangan kong maging malakas, buhay ang loob, hindi basta natataranta, hindi pwedeng lumuha....


Pero hindi ko kaya....kasi mahal na mahal ko sya... dahil anak ko sya at ako'y isang ina.

Down Memory Lane...

Nagkalkal ako kanina sa garahe. Plano ko kasing i-organize ang mga photos namin lalo na yung sa mga bata. Balak kong gawan ng "updated" version ng kani-kanilang photo albums, mula noong maliliit pa sila hanggang ngayon. Hirap lang komo sandamakmak sya talaga naman pinawisan ako sa kakakalutkot. Kahirap pa naman ng ganon pag me hinahanap ka siyempre me mga di maiiwasang bagay na makikita ka kaya resulta nagdrama akong mag-isa sa ibaba. Me pa cry-cry with matching nginig ng nguso.


Unang kahon na nabuksan ko, mga litrato ng dalawang anak ko nung panahong magkakalayo kami. Mga litrato na nung nakita ko noon e iniyakan ko ng todo todo at iniiyakan ko pa rin hanggang ngayon. Sumunod na kahon na binuksan ko, mga litrato naman ni Kyle. Me mga kuha doon na kaming tatlo ng Papa nya at meron kaming dalawa lang. Naisip ko tuloy, habang busy kami dito sa "pag-iipon" ng happy memories eka nga, para kay Kyle, hindi namin namalayan na nalulubog na pala kami sa "utang" sa dalawa naming anak.


Ilang birthdays ba ang dumaan sa kanila na wala kami? Ilang Pasko, ilang Bagong Taon? First Communion ni Kristine nasan kami? Mga activities sa school, graduations? First crush, first suitor, first heartache at kung anu-ano pang firsts? Nakakalungkot kasi hindi kami ang unang nakakaalam. Sa parteng yun, walang katumbas na pera ang pwedeng itapat. Kahit anong okasyon ang i-celebrate ng nasa Pilipinas, kahit ibuhos mo pa lahat ng pera mo sa handa, wala....hindi ka parte sa kasiyahan. Silang lahat masaya...pero kami nasan? Nandito, pinagkakasya na lang ang sarili sa pakikinig sa ingay nila sa telepono o kaya masiyahan na lang sa mga litrato na ipapadala sa amin. Sabagay, yun naman ang importante, yung masaya sila.


Pangatlong kahon na nabuksan ko, mga sulat at cards. Nagbasa-basa ako ng konti. Merong masayang balita, me malungkot, me nakakairita, me nakakatawa at meron ding simpleng pangungumusta. Isipin mong maranasan ko lahat yang mga emosyon na yan ng dahil lang sa paglilinis ng garahe? Resulta tuloy parang mas napagod pa ako sa kaka-emote kesa sa pagbuhat-buhat ng mga kahon.


Na-realized ko sa pagtingin ko sa mga abubot ko sa garahe na sa medyo tinagal-tagal pala naming wala sa Pilipinas, marami na akong kamag-anak at kakilala na hindi ko na muling makikita. Katulad ng bayaw ko na si Kuya Pat, pamangkin ko na si Bong, Ditseng Luningning at asawa nyang si Syahong Pedring, Si Tiyo Ramon, Tiya Puring, apo nyang si Tristan, si Ate Zeny at marami pang iba. Nakakalungkot...


Sa isang banda naman, ang dami ko na ring hindi kakilala na mga batang parang mga kabuteng nagsulputan. Nagulat ako dahil mabibilang ko pa naman sa mga daliri ko noon ang mga bata sa amin at natatawag pa sa kani-kanilang pangalan. Pero susmaryosep! Nung umuwi ako, biglang me kakalabit na batang uhugin sa tabi ko, akala ko e pulubi, apo ko na pala! Kumukulo ang mga bata! Nakakalito!


Umakyat ako sa itaas na bitbit ang napakaraming litrato at photo albums. Pero higit sa lahat dala ko rin dito sa puso ko ang mga ala-ala ng nakalipas masaya man o malungkot, kasama man ako o hindi.

Ako! Ako! Puro na lang Ako!

Ako lang ba nakakaramdam ng ganito? Yun minsan parang tamad na tamad ka na ayaw mong gumalaw? Minsan naman parang inip na inip sa kung ano na halos di mo malaman ang gagawin mo?


Ako lang kaya ang nakakaramdam ng pagod? Minsan ng pagkasawa na rin? don't get me wrong, hindi ako nagsasawa sa pag-aasikaso sa mga anak, sa bahay and at the same time nagtatrabaho pa pero, parang gusto ko na lang sana kung pwede e magbakasyon, magpakasarap, magrelax ng walang iniintindi.


Ako lang kaya ang nasa sitwasyon na ganito? Na maraming gustong gawin pero tali ang kamay? Daig pa ang preso? Ganito ba talaga buhay? Para mabuhay kailangan mong kumayod sa puntong para ka namang patay dahil wala kang layang gawin ang nais mo?


Ako lang kaya ang ganito? Na karaming trabaho dito sa bahay pero walang maumpisahan at matapos? Lintok kasing computer ito e! Imbes na trumabaho pag naharap dito patay na! Tumatakbo ang oras ng hindi namamalayan dahil kakabasa ng blogs, news (politics/entertainment) usyoso sa friendster, google dyan google dito.
Bat pag naharap ka pa naman sa computer at maisip magsulat ng entry sa blog e dun na lumalabas ang mga sentimyento de asukal, tampong pururot, emo, moment-moment, chaka-chaka, eklavu ek-ek. Kainis!


Ako lang palagay ko ang ganito na nagpoproblema ng wala. I have to find a way to channel this excessive energy/time to something useful and productive (ala Big Russ and Me a!)
Umpisahan ko na by exercising. Lakad na muna ako sa park at baka sakaling makakita ng mga cute.........cute na aso!


Btw, Big Russ and Me is a good read. Grab a book!

Sneak Peek

I don't know if I should feel proud or what. Mixed emotions kasi maybe because of the circumstances that brought him to this.

Kyle was chosen as one the Youth Ambassadors for American Diabetes Association. That means, his face will be plastered all over the state at nationwide pa nga raw thru posters, billboards and fliers. There are also some "talks" for him to appear on local television stations (kasama pamilya) at special invitations for gala nights wherein some famous celebrities will come ( like yung youngest sa Jonas Brothers kasi Type 1 din yun). Pero let me reiterate na the people behind these events are still working on it. Maaring matuloy, maaring hindi.

Pero ang sure e itong mga ads. Heto na yung makikita sa mga billboards na nasa tabi ng daan, sa malls at kung saan pang public na lugar.

Siguro, ito na yung purpose kung bakit nangyari sa kanya ito. To help raise awareness about this disease...na in his own little way, makatulong sya kahit papaano....kahit through visual ads man lang.

Looking Outside The Window...

...I can see Dad teaching Kyle how to ride the bike for the first time without the training wheels on. Kyle is kinda scared but eagerness to learn prevailed. I can see the frustrations creeping in but that does'nt keep him from trying again and again.


...I can see beads of perspiration but I also see the glint of determination in his eyes. With eyebrows creased, a slight smirk he pushes that pedal like he's really sure that he can do it.


...I can see that he's getting tired... Tired of wrestling with his bike! He succumbed to the realization that learning to ride a bike is not a one-time thing. It takes a lot of patience and that he has to learn more about the so called "balancing act."


...I can see that he's giving up ...for now. Dad is getting tired too so it's time to go in and eat lunch. I can hear Kyle calling me from the front door asking me to help him with his shoes....yes, THAT tired that he can't even get his shoes off!


Got to go...the prince is calling!

Buhos Pa Ulan

Galing na kami sa Gray's Lake kanina and since there's nothing to do around the house, we decided to go there again tonight. Sa daan pa lang napansin na ng asawa ko na madilim ang mga ulap pero go pa rin.


Hindi pa kami nakakarating sa tulay, umulan na ng pagkalakas-lakas! Okey lang sa akin at sa mga dalaga ko na mabasa at maligo sa ulan kaso hindi pwede si Kyle. Bawal kasing mabasa ang pump nya. Kaya nagkulong muna kami sa restroom habang hinihintay namin si Kristine na mag-ala Rihanna with the umbrella. Manaka-naka'y lumalabas kami ni Kaye para magpakabasa.


Nakakatuwa! Ang sarap maligo sa ulan! Ang sarap ng feeling na kahit sandali lang, sa pamilyar na gawain e bumalik ka saglit sa pagkabata. Nakita ko rin yun sa reaksyon ng mga anak ko kanina. Ang tuwa at lutong ng mga halakhak habang nagtatampisaw sa ulan. Parang kahit saglit lang, nakita ko uli silang mga "bata" na syang naisakripisyo naming mag-asawa nung iwan namin sila.


Kaya nung makauwi na kami at magpaalam na maliligo pa sila sa labas, pati ama nila hindi na kumontra. Nandon sila sa drive way at nakasalampak sa daan. Nagkukuwentuhan, nagtatawanan habang bumubuhos ang malakas na ulan.


Hintayin ko na lang na kusa silang ginawin at umayaw. Nakahanda na ang mga tuwalya sa hagdan. Pansamantala, hayaan ko muna silang magpakabata.

Kung pwede lang sanang palaging ganon ano?

Bakit Kaya?

Pag nasa 'Pinas ka at ulam mo tuyo, wala kang ganang kumain? Pero pag dito sa Isteyts, walang kasingsarap?!


Pag nasa 'Pinas at bulanglang ang ulam mo ng dalawang sunod na kain sawang-sawa ka na? Pero pag dito sa Isteyts, kahit isang araw mo na syang ulam hanggang kinabukasan pa, sarap pa rin?!


Pag nasa 'Pinas ka at pumasyal sa mall, sarap kainin ng fried chicken o kaya burger. Pero pag dito sa Isteyts, kasawa na rin?!


Pag nasa 'Pinas ka at nakakita ka ng blond ang buhok at blue ang mata, tinititigan mo. Pero pag dito sa Isteyts, wa mo na sila pansin. Sila naman ang tumitingin sa iyo at nakikinig pa sa usapan nyo. Pag di pa nakatiis, uusisain ka pa kung anong language gamit mo at saang bansa ka galing?!


Pag nasa 'Pinas ka pati pagkakarga ng gasolina sa sasakyan mo may gagawa para sa iyo. Pero pag dito sa Isteyts, pump your own gas. Matatapos ang transaksyon ng wala kang kinausap ni isang tao. Pati sa pagka-car wash. Kahit walang tao, mahuhugasan ang sasakyan mo?!


Pag nasa 'Pinas ka at magsa-shopping ka sa mall, daming nakabantay na salesladies sa iyo, sunod ng sunod. Feeling mo, reyna ka na kasi lahat ng pahanap mo talagang hahanapin with matching "po" o kaya "ma'am." Pero pag dito sa Isteyts konti salespeople pati na shoppers. Kaya bahala ka maghanap ng size mo. Pag di mo nakita at nagtanong ka, sagot sa iyo, "sorry we don't have that in stock." Pero di naman tsi-nek?!


Pag nasa 'Pinas ka, gusto mong makarating ng Amerika. Pero pag nasa Amerika ka na, hindi ka naman makahintay na makauwi na?!


Pag nasa 'Pinas ka, palagi kang updated sa Hollywood chismis at current events. Pero pag nasa Isteyts ka, chismis ng local artists natin at makamigraine attack na politics sa pinas ang pinakikibalitaan mo. Kaya nga pa subscribed ka pa ng TFC at GMA Pinoy TV di ba?!


Ano ibig sabihin nito?


Pilipino ka pa rin! Sa puso, sa isip at sa gawa! Walang makapagpapabago non kahit ilang taon pang paglalagi sa ibang bansa. Hahanapin mo pa rin tuyo, bagoong, adobo at kanin.
Kahit nga maalinsangan uwi pa rin ang hiling dahil miss mo na sila at gusto ng makapiling.

Bow!

Proud Momma!

Hinatid ko si Kyle kahapon sa school at nakausap ko ang kanyang teacher. Nasabi nya sa akin na si kulit pala, nag-umpisa nung isang araw e pinajo-join na nya sa 1st grade for reading session. Ang level daw ni Kyle kasi e first grader na. To quote her teacher..."it's amazing how he absorbs everything. He's like a sponge!"



I know! I know! The compliment is very cheesy and generic but just the same, sarap ng feeling ng lola nyo! Pakiramdam ko matangkad pa ako sa mga kano! I now realized that being a stay-at- home mom has its reward too. Money wise, I am poor but being there for my kids and see them achieved something academically is BIG deal for me. I feel like I am Melinda Gates sans the money.Lol!



So now, I sort of change our bedtime routine. Last night, I got to choose a book that I like for Kyle to read to me! And he even asked to lead the prayer.


Isn't he smart?

Kyle's Bi-Monthly Check-Up

I told his doctor that I am having second thoughts about the pump. Since we used that gadget, seems like his blood glucose reading is out of control...results were extremes. Not to mention the now-you-see, now-you-don't ketones.



Maybe to appeased me ( and also it's time) she took some blood to test his HbA1c. From 8.1% it went down to 7.8%, that means his average glucose reading for the past two to three months is between 150 to 180.I have to admit it made me feel good.



She did some adjustments with regards to his basal rate but nothing drastic, just less than a unit. She advised us to just continue what we're doing and that I am doing a good job. I kinda rolled my eyes when she said that.



Next appointment: March 05,2008

Isn't It Ironic?

When Kyle was diagnosed with Juvenile Diabetes at 22 months, I cried so hard till I can't cry anymore. I was really devastated to the point that for months, I refused to give him shots. I can't accept the fact that his life is now dependent on insulin...needles...syringes...on lifetime insulin shots and finger pricking...that he must follow a strict diet... learn how to count carbs and read the nutrition facts on every package of foods/drinks that he's going to eat/drink...no sleep over...no sleep in...no spontaneity for he has to follow a schedule...of when and how much to eat,when not to eat, what not to eat. You have to watch him like a hawk to look for symptoms of hypoglycemia and you have to check his urine if he's spilling ketones in the event that his blood glucose shoots to the roof.


When I finally come to terms with his sickness, my only regret then was SANA MEDYO MALAKI NA SYA BAGO NAGKASAKIT AT LEAST MARAMI NG NATIKMANG PAGKAIN AT MASASABI NYA KUNG ANO NARARAMDAMAN NYA.


And now after almost four years, I've read about SULPHONYLUREA AND MONOGENIC DIABETES. I thought I stumbled on a gold mine! I thought, THIS IS IT! But then, as I keep on reading, the BIG disappointment...for you must be diagnosed within the first 6 months of life to be considered for genetic testing and there is only a small percentage of people who actually have "sleeping" insulin- producing cells and by taking Sulphonylurea these cells can be activated.


Ngayon alam nyo ba wish ko? SANA NA-DIAGNOSED NA LANG SYA NG MAS BATA PA AT BAKA SAKALING PWEDE SA KANYA ITO.


Nakakatawa ano?


At nakakalungkot din.


BUT


I am NOT giving up hope...for THE GREAT HEALER is with us...AMEN!

Private Nurse

Hindi nakapasok ang asawa ko kanina sa trabaho. Lumala ang matanda! Lalong nawala ang boses, nilagnat uli at very dry ang ubo. Gumawa na sya ng appointment at kaninang hapon kasama si Kaye, dumiretso sila sa ospital. Naiwan ako sa bahay para naman bantayan si Kyle na may sakit pa rin.


Niresetahan na sya ng antibiotic at Lidocaine Hydrochloride. Inaadvisan pa nga sya na magpahinga pa at wag munang pumasok bukas pero matigas ang ulo. Papasok daw sya.


Aga ko gumising kaninang umaga. Alas sais pa lang kasi hindi sya makatayo kaya ako nag-asikaso sa mga bata. Napilitan tuloy akong magluto. Sabagay madali lang naman niluto ko, pritong itlog, hotdog at bacon.


Ako rin naghatid sa kanila sa school. Si Kristine, hinatid ko sa bus stop ng mag-aalas siyete. Pagsakay ng school bus, uwi ako at si Kaye naman ang hinatid ko. Napakaginaw pa naman! Pag-uwi ko tuloy, nagtalukbong at natulog uli ako.


May sakit pa rin si Kyle. On and off ang lagnat, grabe ang ubo at wala ring boses. Puro bulong lang kami mag-usap. But the good thing is, okey na ang ihi nya,negative na sa ketone. Bumaba nga ang sugar nya around midnight (67) kaya sinuspend ko muna yung pump at kahit tulog, pinainom ko ng orange juice at pinakain ng crackers. Mga ala-una, umakyat na sa 94. Hinintay ko pa na tumaas ng konti bago ko ni-resume. Kailangan kasi mga 100 bago ko uli i-on ang pump. Mga 1:30 a.m. nasa 97 na sya.


Mga 2:30 a.m. pinainom ko naman ng gamot at tsinek uli ang dugo. Nang masiguro ko na okey na sya, natulog na ako. Nagising ako uli nung nag-alarm na yung cellphone ng 4:00 a.m. para i-check uli ang dugo at temperature nya.


Ang tahimik ng bahay. Palibhasa'y malat pareho yung maiingay. Puro tunog ng TV ang maririnig at manaka-nakang hagikgikan ng dalawang babae sa itaas at madalas na pagtahol nitong dalawang pasyente ko. Si Kyle walang ganang maglaro. Gusto lagi lang nakadikit sa akin. Nakalayo lang ako sa kanya ngayon kasi tulog na naman. Pagkatapos nyang maghapunan, nahiga na at pagod daw sya. Ganon din sya kagabi, tulog ng tulog e pag ganon mas lalo akong kabado kaya wala akong ginawa kundi tusukin sa daliri kada dalawang oras para masiguro kong ayos.
Hay hirap! Pati tuloy ako matamlay....o baka naman SAD (Seasonal Affective Disorder aka Winter Depression) na ito? Di kaya?


Meron din palang ganito pag summer?! Ang tawag naman Reverse Seasonal Affective Disorder. Ano ba yan! Kung anu-anong klase ng depression meron dito sa Tate, nakakaloka!!!

Not Again!

Kyle is down with sore throat, cough and fever since Sunday.

Just checked his temperature at around 7:00 pm and it was 101.4F.


Checked his blood glucose and it was 531! I immediately checked for ketones-POSITIVE!

Changed insulin set and site. Gave correction bolus of 0.4 via pump and an extra 2 units Novolog via injection.

Now I have to wait for two hours to check his blood glucose, check for ketones and his temperature. Time for next medication is at 10pm. He is sound asleep now...so peaceful...so innocent. Poor guy, so young but he's going through a lot.

My husband is also sick. Same thing with what my son has. He was not able to report for work Monday and Tuesday. We thought that by the time his days-off are over (Wednesday and Thursday) he'll be fine. Not! He is a lot worse! But he already decided that he's going to report for work tomorrow...rain, sleet or snow!

Time to fumigate!

Sagot Sa Aking Dasal?

From this magazine article, I visited JDRF's website to do some research on Monogenic Diabetes. And here's what I've found out:

What is Monogenic Diabetes?

The most common forms of diabetes, type 1 and type 2, are polygenic, meaning the risk of developing these forms of diabetes is related to multiple genes. But some rare forms of diabetes result from mutations in a single gene and are called monogenic. Monogenic forms of diabetes may account for about 1 to 2 percent of all cases of diabetes in young people. In some cases of monogenic diabetes, the gene mutation is inherited; but in others, the gene mutation develops spontaneously. Most mutations in monogenic diabetes reduce the body's ability to produce insulin, a protein produced in the pancreas that is essential for the body to use glucose for energy. As a result, monogenic diabetes can easily be mistaken for type 1 diabetes.

Types of monogenic diabetesPermanent neonatal diabetes mellitus (PND), transient neonatal diabetes (TND), and maturity-onset diabetes of the young (MODY) are the main forms of monogenic diabetes. These forms of diabetes can include a group of different genes; some respond to treatment, while others are mild and should not be treated. MODY is the more common form. PND and TND first occur in newborns and young infants; MODY usually first occurs in children or adolescents but may be mild and not detected until adulthood. Genetic testing can diagnose many forms of monogenic diabetes. If a diagnosis based on genetic testing is not made, people with monogenic diabetes may appear to have type 1 or type 2 diabetes.
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I consulted Dr. Jennifer Cook, a Pediatric Endocrinologist about this and asked if it is possible for Kyle to get tested. The answer is a very disappointing NO. I asked if she thinks that Kyle had this kind of diabetes and her reply was " I doubt it".

I sort of expected that answer because from what I've read, there are guidelines to be followed for you to be considered a candidate. Here's the article:

Who Should Be Tested?

Genetic testing can diagnose many forms of monogenic diabetes. Because it is so rare, relatively few people will be diagnosed with monogenic diabetes, as Lilly Jaffe was. But the number could run into the tens of thousands, worldwide. And it clearly illustrates how research advances can quickly and dramatically change the lives of people with diabetes for the better. You might want to consider testing for monogenic diabetes if you or your family member meet the following criteria:

diagnosed with diabetes during the first six months of life,

familial diabetes with a parent affected,

mild fasting hyperglycemia (high blood sugar), especially if young or familial,

and/or diabetes associated with extra pancreatic features.

Some tests that help differentiate monogenic diabetes from type 1 diabetes are simple and relatively inexpensive; parents of children who were diagnosed with type 1 diabetes at an early age should discuss with their physician whether such a test was conducted at the time of diagnosis, as such testing is typically not done. A correct diagnosis that allows the proper treatment to be selected should lead to better glucose control and improved health in the long term. Testing of other family members may also be indicated to determine whether they are at risk for diabetes.
***********************************************************************************

Sa una palang, bagsak na! Kyle was diagnosed when he was 22 months old. But still, I am hoping against hope for them to consider my request. Pano kung posible pala yung older than 6 months e maging positive sa genetic testing na yun? We will never know unless we try, right? But then his doctor said, it's not on top of her list.

Kaya kanina sa ospital, I can't help but tear up in front of the doctor. I feel so helpless and hopeless. My heart bleeds for my little boy. In a way, I am thankful that he's so young to understand all these. I don't know how he can handle the disappointment.

As for me? Oh...Believed me, you don't wanna to know....

Daddy's Rules For Dating

Rule One:If you pull into my driveway and honk you'd better be delivering a package, because you're surely not picking anything up.

Rule Two:You do not touch my daughter in front of me. You may glance at her, so long as you do not peer at anything below her neck. If you cannot keep your eyes or hands off of my daughter's body, I will remove them.

Rule Three:I am aware that it is considered fashionable for boys of your age to wear their trousers so loosely that they appear to be falling off their hips. Please don't take this as an insult, but you and all of your friends are complete idiots. Still, I want to be fair and open minded about this issue, so I propose this compromise: You may come to the door with your underwear showing and your pants ten sizes too big, and I will not object. However, in order to ensure that your clothes do not, in fact come off during the course of your date with my daughter, I will take my electric nail gun and fasten your trousers securely in place to your waist.

Rule Four:I'm sure you've been told that in today's world, sex without utilizing a 'Barrier method' of some kind can kill you. Let me elaborate, when it comes to sex, I am the barrier, and I will kill you.

Rule Five:It is usually understood that in order for us to get to know each other, we should talk about sports, politics, and other issues of the day. Please do not do this. The only information I require from you is an indication of when you expect to have my daughter safely back at my house, and the only word I need from you on this subject is: 'early.'

Rule Six:I have no doubt you are a popular fellow, with many opportunities to date other girls. This is fine with me as long as it is okay with my daughter. Otherwise, once you have gone out with my little girl, you will continue to date no one but her until she is finished with you. If you make her cry, I will make you cry.

Rule Seven:As you stand in my front hallway, waiting for my daughter to appear, and more than an hour goes by, do not sigh and fidget. If you want to be on time for the movie, you should not be dating. My daughter is putting on her makeup, a process than can take longer than painting the Golden Gate Bridge. Instead of just standing there, why don't you do something useful, like changing the oil in my car?

Rule Eight:The following places are not appropriate for a date with my daughter: Places where there are beds, sofas, or anything softer than a wooden stool. Places where there is darkness. Places where there is dancing or holding hands. Places where the ambient temperature is warm enough to induce my daughter to wear shorts, tank tops, midriff T-shirts, or anything other than overalls, a sweater, and a goose down parka - zipped up to her throat. Movies with a strong romantic or sexual themes are to be avoided; movies that feature chain saws are okay. Hockey games are okay. Old folks homes are better.

Rule Nine:Do not lie to me. I may appear to be a potbellied, balding, middle-aged, dimwitted has-been. But on issues relating to my daughter, I am the all-knowing, merciless god of your universe. If I ask you where you are going and with whom, you have one chance to tell me the truth, the whole truth and nothing but the truth. I have a shotgun, a shovel, and five acres behind the house. Do not trifle with me.

Rule Ten:Be afraid. Be very afraid. It takes very little for me to mistake the sound of your car in the driveway for a chopper coming in over a rice paddy near Hanoi. When my Agent Orange starts acting up, the voices in my head frequently tell me to clean the guns as I wait for you to bring my daughter home. As soon as you pull into the driveway you should exit the car with both hands in plain sight. Speak the perimeter password, announce in a clear voice that you have brought my daughter home safely and early, then return to your car - there is no need for you to come inside. The camouflaged face at the window is mine.

Taon nga ng Daga...

Me---------------------------------------------------------jobless

Husband---------------------------------------------------soon to be unemployed

How to pay the bills----------------------------------------don't have any idea

Family bonding-------------------------------------------priceless

Pero di ba, mas masarap magbonding kung walang problemang pinansyal? Ang mga bata pa naman, kalakas ng pakiramdam. Makita ka lang tahimik at medyo nakakunot ang noo, susulyap-sulyap na at nakikiramdam rin.

Nataon pa naman na nagpabili ako sa asawa ko ng red wine . Hindi naman talaga ako umiinom impak, masinghot ko nga lang kahit beer, lashing na ako. Eniwey, isang hapon try ko uminom. Lagay ng konti sa baso, tikim ng konti at pweee! ang panget ng lasa!

Dinagdagan ko ng sangkatutak na orange juice, tikim uli at hmmnn, masarap! Naubos ko nga e yung sinalin ko sa baso. Wala pang limang minuto super pula na ng leeg ko hanggang mukha. Nahilo-hilo ang byuti ko kaya humiga ako sandali sa sofa. Akala siguro ng dalawang anak ko, tulog ako. Narinig ko yung bulungan nila.

Kaye : Bakit ba umiinom si Mama? Ha, Kristine?
Kristine : Ewan ko nga e. Alam kaya ni Papa?
Kaye : Bakit kaya ano?
Kristine : Baka lubog sa problema kaya naglalasing.


Nadala ako. Hindi na ako umulit. Ayokong tumanim sa isip ng mga anak ko na alkohol ang sagot sa problema. Ayoko ring isipin nila na kung kailan ako tumanda at saka pa ako natutong uminom. Isa pa, ama nga nila hindi uminom, ako pa? May nagsabi lang kasi sa akin na maganda raw ang red wine sa health kaya try ko naman.

Susundin ko na lang sabi sa akin ng asawa ko...."Tumawag ka sa doktor natin at gumawa ka ng appointment para sa annual physical mo. Yan ang mabuti sa health."

Kaya on January 30 @ 2:00 pm, go kami sa doktor para sa complete check-up naming dalawa. Mas mabuti ng masiguro naming healthy kaming dalawa para sa mga anak namin. Ang mga bata tapos na sa mga check-ups nila. Dental appointment na lang bukas.

Pangit ang dating ng bagong taon sa amin sa aspetong pinansyal kaya doble ingat na lang pagdating sa kalusugan. Di ba sabi nga, HEALTH IS WEALTH?

Scared to Death!

I received a call from Kyle's school nurse early Monday morning and it scared the daylights out of me! I almost fainted when she told me that my son's blood glucose was 534! AND spilling LARGE ketones!




I immediately drove to his school, changed the site of his insulin pump and gave him an additional 5 units of Humalog via shot at left thigh. At around noon, his blood sugar was down to 142 with small urine ketones. He was back in class after lunch break.




I went home at around 1:00 pm to shower and have some coffee. Then back to school at 2:15 to check on Kyle. By this time, his blood glucose was 169 and NEGATIVE ketones. What a day!AND what a way to start the week ha?




Life is a like a roller coaster ride...with ups and downs...fast and slow...you don't have any idea what will happen next. You thought that everything is okay then suddenly something goes wrong.
Okey lang ang problema....PERO WAG NAMAN LUNES NA LUNES AT WAG NAMAN GANYANG KLASE!




Kung pwede lang naman....